Mother Seeks Treatment, Awareness For Angelman Syndrome
Individuals often misdiagnosed; Melissa Winger wants education
Will Norris is a precocious 3-year-old boy born Nov. 8, 2009. He is a happy child with a positive demeanor, his mother reports, and he has a lovely smile. That is one of the traits of Angelman syndrome (AS), but other traits are less agreeable, such as life-threatening seizures (if not properly treated), significant developmental delays and lack of speech, including cooing or babbling as an infant. “When Will wasn’t hitting the usual milestones, we didn’t stop visiting doctor after doctor until finally one knew about Angelman syndrome,” his mother, Melissa Winger, said. “But that process took too long, and my heart goes out to families across the country that may right now be experiencing this same anguish.” Angelman syndrome is a …
Amy Harris
9:52 am on Wednesday, February 13, 2013
My heart goes out to you. My oldest son (13) has Tourette Syndrome, and it took us years for someone to tell us what we already sort of knew. Just getting an answer is half the battle. Getting someone to understand, sympathize, empathize, and just have ANSWERS. We know full well that there will be no cure in his lifetime, but it has made our entire family better people. I'd love to reach out and … more ›